Archive for August, 2011

August 30, 2011

My favorite day of the year!

by Living with RSD: what comes next?

I sent my kids off to school this morning. One in fourth grade and the older in 7th. It was a great morning for them and a wonderful day for me. It was wonderful to be here to send them off to school and enjoy those moments with them. We got the obligatory first day pictures and some great smiles.

But the great thing for me was that I got to braid my daughters hair. This might seem insignificant to many of you. To me, this was major. There have been many years that I couldn’t even brush her hair. This year, I did a small braid with a flower accessory. She felt special and I felt wonderful. I did it!

My hands are killing me, but it’s worth it to see her smile.

Today, they’ll remember new friends, new bags, and a brand new year. I’m going to hold onto that perfect braid and a beautiful smile!

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August 28, 2011

Tearing down the blocks

by Living with RSD: what comes next?

It’s been some time since I’ve last written. I’ve had some pretty bad writer’s block lately. I can’t say that I’m surprised. It kind of matches how I feel, I feel very far removed from my emotions and myself. Lost.
I’ve always been a person with direction, a Virgo for those of you who follow horoscopes. I typically have a plan B and do risk analysis before making major decisions. Even minor ones truthfully. But this block….I don’t have a plan. I’m just stuck. Nothing. I’ve got no plans.
A major breakthrough in my physical therapy has happened. I can now wear shoes other than tennis shoes. Big deal. Huge. Major. But I can’t seem to do anything about it. I have this block. I can’t go back to my old shoes. They will hurt me. Or, to be more clear, I will get hurt wearing them. The therapists have recommended the new shoes for me. I don’t want them. I want my old shoes. But, can’t have them. Only for special occasions. I need go move on. It breaks my heart.
Instead of moving on, I just stay in my Brooks Running shoes, even though I’m not allowed to run anymore. At least they have purple shoelaces.

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August 14, 2011

New career: Weatherman?

by Living with RSD: what comes next?

Stormy weather has always been my favorite. Particularly after this long hot summer. Now, I have my own built in weather system. Just when it feels like someone is squeezing my neck, arms and legs, the storms typically roll in. It’s not too uncomfortable, relatively speaking. Just different.
So, thinking of ways to capitalize on this, I’m thinking weatherman. I am pretty accurate. Of course, this is only right before the storm comes.

The future seems brighter every day.

August 11, 2011

Visiting hours

by Living with RSD: what comes next?

Some people visit their long, lost loved ones, sharing conversation, coffee and well wishes. They find comfort in the love that withstands the test of time. Like a favorite old book, you can pick it up at any point in time and fall in love all over again.

Some people spend hours with these loved ones. I visit my shoes. I was feeling a little down tonight, so I went into my shoe closet to visit my adored ones. They were a little dusty in need of some TLC. There was a method to my madness. I started out with my shoe closet. I went to the summer flats at first. These were my most recent rejects. They looked a little sad. No summer parties, or walks through the parks. Just a storage bag to hold them all. They barely saw the light of day.

I went over to my next set of forgotten friends…the winter boots. Now, I packed these up a long time ago as well, so they were a little dusty. But, I had also double bagged them and put them in a storage box. I sat on the floor and caressed the soft suede of the boot. I did refrain from smelling them, but it was tempting. I love the smell of distressed leather. I wanted to spend more time with them, but I had my eyes set on something else.

Now, day to day shoes I will store in bags and boxes because it’s easier on the space. But my favorite friends stay in their original boxes. Lined up on shelves, OCD style from largest to smallest. I dusted off the boxes, because they were dusty, and ran my fingers over the labels. I can’t say that I’m really into the labels as much as the quality. After all…those 4 inch heels can really tear up your feet. Today, I couldn’t open the boxes. I simply said hello to my old friends. But, there was one pair that I needed to visit.

I went into my clothes closet, where I have some overflow. I pulled out the very pair that I wore almost a year ago when I broke my foot. Amazingly, they didn’t break. I didn’t put them on”. But, I do believe that time will come soon.

I do visit the old friends every now and then. I’m coming to the end of my time in tennis shoes. I don’t know what my PT has in mind. I keep showing her pics of the fall boots. Surely, there are more options!

August 5, 2011

A landslide

by Living with RSD: what comes next?

I’m a very musical person. There is something very calming and soothing to me. It can bring me to a place of clarity that I can’t reach with people or words.

One of my favorite songs is Landslide by Stevie Nicks. I’ve been obsessing on it recently. As a matter of fact, I’m listening to it right now as I write. For those of you who don’t know, it’s about changing and growing. As I child, I felt like it represented growing up. Then, as a young adult, it made me think of letting go of your youth and becoming an independent adult. Now, it gets me to thinking about the changes that are going on in my life. I’ve always been one to embrace change. Embrace might not be the right word. I cannon ball through changes. I thrive in change. This is likely the first change in my life that I haven’t embraced. Change is a necessary evil. You must change in order to evolve. Living with RSD has forced me to change in a direction that I’ve been fighting. I’ve been so uncomfortable for the past few months because I realize that change isn’t something that I enjoy right now. I don’t know that I’ll get to enjoying this change, but I think that I can learn to embrace it a bit more. Like the song says, “I’ve been afraid of changing..”

May be it’s time to jump in. If I can’t cannon ball, may be I can dip my toes in and get my feet wet.

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August 2, 2011

Am I a hypochondriac?

by Living with RSD: what comes next?

I had an appointment with my pain management specialist today. I was dreading this day because I knew how the conversation would go. Right before a holiday, I had an episode with my device. It was malfunctioning and didn’t seem to work. I had shocks every 10 minutes going up to my head. When I went to get the devices reprogrammed, the device rep told me that two leads were burnt out. He didn’t know why. That was 6 weeks ago. I’ve been dreading this day ever since. I knew that that episode would spur a number of questions that I couldn’t answer.

So, tonight I have a fistful of prescriptions, tests and appointments to schedule. Ultimately, I know that I’m okay. But, here’s another series of CT scans, blood tests and neurosurgeons. It’s the great catch 22 at the doctors. Do you keep your mouth shut or do you let them know what’s going on? And, if you do tell your doctors, what do they think? In my heart, I just want one week without a doctor’s appointment. I want to be able to spend that time with my kids. Instead of less appointments, I have more. And, I really do wonder sometimes, am I a hypochondriac? Is this some sick cry for attention that I really don’t want? After awhile, you hit a point where you start to question yourself. I have some comfort in thinking that really hypochondriacs wouldn’t question themselves…or would they?

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