Connecting with others

by Living with RSD: what comes next?

One of my therapists, Leta, gave me the name and number of client who also has a neurostimulator implanted. She was looking to connect with others who have implants. This was the first time that I have spoken to another implanted patient. Her implant is for a facial nerve. The leads are on her upper lip and above her brow. They connect behind her left ear with the wire connecting to the battery above her breast bone. She is having some troubles adjusting to the implant. She is four weeks after the surgery. We shared our stories and journeys that have lead to these decisions. I spoke to her for about 45 minutes. While I spoke to her, I felt good. I was finally doing something to acknowledge and accept what has happened to me. It felt a little less that something bad happened to me, but rather I was doing something about the bad thing that happened. I felt very positive.
After I got off of the phone, I cried for hours. It was a level of acceptance that I haven’t felt yet. I have spent the last few years in and out of doctors, but I haven’t really heard what they were trying to tell me. It’s been a long journey medically, but I haven’t started the journey to heal my soul. May be this is the first step.

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